Skip to main content

Welcome to the
My Adrenal Life Community

This community exists because people living with adrenal insufficiency deserve accurate information, lived experience, and real support—all in one place.


Our website is your home base for trusted resources, guides, and tools.


Our private Facebook group is the
 members lounge—where connection, conversation, and peer support happen.

You don’t need to chase information across platforms.


Start here. Stay grounded. Stay supported.


The My Adrenal Life community is for:


  • People living with primary, secondary, or tertiary adrenal insufficiency
  • Caregivers and family members supporting someone with adrenal disease
  • Individuals navigating diagnosis, treatment changes, or complex symptoms
  • Those who want evidence-informed education without fear-based messaging


This is a patient-centered, lived-experience-informed space grounded in compassion, safety, and mutual respect.

What You’ll Find Here

Members of our community have access to:


  • Downloadable PDFs and printable tools hosted right here on our website and in the group.
  • Emergency preparedness guides and symptom-tracking resources
  • Weekly themes and educational discussions
  • Real-world insights from patients, caregivers, and advocates
  • A moderated, private space focused on support—not misinformation


The Facebook group is used for conversation and community and resource  sharing.



COMMUNITY GUIDELINES

A Safe, Moderated Space

Our community is actively moderated to protect members.


We do not allow:


  • Medical shaming or dismissal
  • Dangerous dosing advice
  • Fear-based or alarmist content
  • Harassment or judgment of personal treatment decisions


We encourage respectful dialogue, shared experience, and supportive discussion—while reminding everyone that medical decisions belong between patients and their healthcare providers.

Ready to Join the Community?